They say a journey by train offers uniqueness like no other journey. When Emersyn was first born at 26-weeks gestation, we knew we had a long NICU journey ahead. Immediately it was associated as a train ride for me. The length, the uphill mountains, the milestones, the views. While new for our family, this journey exists. We have been thankful for the ones who have rode before us, helping us see the light at the end of the tunnel. Our journey included peaks and valleys for sure, but it was an inspiring trip. The staff incredible. A view we never expected, but gained so much appreciation for. There aren’t enough blessings to thank the ones who helped along the way.
But this past year? We were invited on a new journey, one we weren’t expecting after already making it through that intensive 100+ day NICU trek. Some days I haven’t wanted to look out the window on this train ride. It’s been dark. It’s lonely. It felt like we had just unpacked. And can I just say that we didn’t even ask for these tickets! It’s like we’re stuck on this slow moving journey without any kind of roadmap.
But by leaning on each other, on our family and friends, we’ve worked hard on adjusting our mindset. The staff, while different from our first ride, are also exceptional. At this time the question marks still remain, but to be seeing Emersyn’s progress, to slow down and truly experience her joy in this journey – isn’t that worth the ride? Isn’t getting there the most enjoyable part? Maybe we no longer have a clear vision of where we’re going, but we’re getting to experience a whole new adventure. One that’s been chosen for us. With this shift, there’s so much to embrace and we have so many cheering Emersyn on. These milestones that once seemed unattainable, with great help we’re reaching them. It has already been a journey of a lifetime and the ride has just begun.
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